Monday, September 27, 2010
Day 33
Saturday we had off. We went riding around Atlanta for a couple of hours. We had a good time. Today is Monday and we didn't do much today. It's storming right now. Tomorrow Lonnie is having a breathing treatment. He'll be doing that once a month so he won't catch pneumonia and then he'll have a bone marrow biopsy. The biopsy is to check to see if the stem cells is grafting or not...his numbers are good so far. he's not getting enough magnesium so they upped his pills and I'm making him some peanut butter cookies.
Friday, September 24, 2010
Day 30
The numbers are looking good. Next week he'll start breathing treatments so he doesn't get pneumonia. Next week he'll have a bone marrow biopsy done to see what the stem cells are doing. He may or may not need more stem cells. We'll see what the biopsy saids. This morning we shaved his peach fuzz off. He now has a slick head. He calls himself velvet head... he's so funny. It sounds like his appointments are going to be farther apart. When the time comes, we're going to ask them if some how we can transfer to the cancer center in Greenville. Not really sure if that's possible but we'll ask. Missing our home, family and friends...
Tuesday, September 21, 2010
Day 28
Our first day off and boy did we take avantage of it. Lonnie slepted all day and I read all day. We walked to the lobby and checked our mail. That was it. Lazy Lazy Day... We go to the clinic tomorrow at 7:45. We're hoping we can come home for the weekend..that would be nice
Monday, September 20, 2010
Day 26
Friday, September 17, 2010
24th Day
Well, his numbers are stable. Lonnie asked them about going home for a long weekend and she said maybe in a couple of weeks. I thought being at the clinic for 6 to 8 hours was long. But 4 hours is just as long. But we sit there and laugh and watch TV. alot of the patients up there don't do alot of laughing. their all sleeping or not saying a word. I guess we have a good attitude. There's a young girl up there, must be in her early 20's. She goes in a room that is isolation. I'm not sure why she goes in there. But I'll find out. We had a black man that was transfer to some where. I talked alot to his wife. He was having a lot of problems and couldn't get his transplant. She was really a nice lady. I met her while Lonnie was in the hospital. We're slowly meeting people up there and learning about them. We've met some people that is using their own stem cells. There's alot we don't understand. I guess Lonnie's stem cell was to far in to the disease. Mom, don't freak out. His just didn't work. Well tomorrow and sunday we go in early, monday at 1:30 and tuesday 7:30. We have to go in early on tuesday so they can check to see his prograf level. He stated the pills this week and they have to the levels once a week. see ya
Day 22
It's real exciting down here (not). We are so ready to go home. Lonnie's numbers are good and we're both bored. We almost look forward going to the clinic. It's something different from the hotel. On weekends we ride around the area. Still haven't found Zaxby. later....
Wednesday, September 15, 2010
Day 21
Going in at 1 felt weird. It gave us time this morning to do some things around. Lonnie took a nap and I worked out. He got use to not having his man bag. Hopefuly next week we'll be going every other day. Not sure what we'll do then. His numbers still going up, but very sloowwww
Tuesday, September 14, 2010
Day 20
Well it sure did go great!!! Lonnie's man bag is gone and now he's down to one bag of fluid a day. Our appointments is later instead of early. We're not sure if that's good or bad. Our appointment tomorrow is at 1:15. It'll give us time to work out in the mornings, that's a good thing, we'll see.
Day 20
Yesterday both my laptop and computer was down. Today is a good day...Yesterday was not but we survived it. Had laundry to do this morning so I dropped Lonnie off at the clinic. He just called and told me that he's down to one bag and they took his man bag away too(a day early). Things are good today.Yipeeee
Saturday, September 11, 2010
Day 17
Well, we didn't think this day would end. Some days it goes by fast and others very slow. The numbers didn't move. But at least they didn't drop any. He might need platelets tomorrow, but we'll see when the numbers comes in. We rode around today checking out our area on the northside of Atlanta. Still haven't found KC or Zaxby. Nor Krispy Kreme. Their all here, just got to drive to far. There's one place I want to drive around and maybe we'll do that tomorrow. We got a package today from our sister n law, Lisa. She teaches 2nd grade and she had her students make some get well cards for Lonnie. They are so cute and sweet. Lisa if ur reading this "Thank you" from both me and Lonnie. Ya'll have a good weekend....later
Friday, September 10, 2010
16th day
Well it's been a couple of days since I've been on here. Lonnie is doing so much better. He's starting to eat soft foods again. He's still losing his hair. His throat still sore much much better. His blood pressure got to low, so the Dr. told him to quit taking his new blood pressure pill that they added. So instead of 2 bpp he's only taking 1. His counts are still climbing. Just a little more slower than than we want. I went home for a couple of days while Lonnie's mom and brother came to stay with him. It was good being home, a couple of things were missing, Lonnie and Shambles. It was good seeing everyone at work. I'm sorry I missed seeing alot of you but maybe the next time I come home I'll get to see the one's I miss. Cheryl, if ur reading this tell Mary I got eye's watching her and she needs to get her sells back up... love you all
Wednesday, September 8, 2010
14th Day
His throat still bothering him. Didn't eat very much yesterday. They changed the pain killers, doubt that will work too. At least he's sleeping. Lonnie said the pills not really helping, he can't feel anything when he's asleep...I'm going home today to pick up some winter clothes, getting my hair done and seeing some of my co workers...Lonnie's mom and brother is coming up today to stay with him while I take a break. I wish Lonnie could go with me. Next time I go to G'ville he'll be going with me. It will only be for the weekend but better than nothing. The drs. say he should start feeling better anyday now. The stem cells seems to be working, his numbers are going up,slowly...
Tuesday, September 7, 2010
13th day
went to x ray. couldn't really find anything. their going to take out his central line tomorrow and put in a pik which will go in the higher part of his arm. his numbers are going up so he should be feeling better..soon
13th day
things should start looking up but not yet. Lonnie's throat is bothering him. he has a rash on his stomach and his central line is swollen. they'll probably put him back in the hospital. at least he's not running a fever. they'll just give him heavier meds for the pain and maybe take the central line out and relocate it. my poor baby, i hate seeing him like this.
Monday, September 6, 2010
12th day
Well, he's doing pretty good. Throat still bothering him. The Dr. left it up to him about going into the hospital. Lonnie told him he wasn't going back to the hospital.. They told him as long as he's eating and drinking he should be ok, and taking his meds. White blood count went from 0 to .1...very good. But the important number that their looking for is the ABS Neut, it's still 0
Sunday, September 5, 2010
11th Day
He's not doing to hot today. His throat hurts, he can't eat and nothing taste good. He's getting 2 bags of platelets. Lonnie saids it looks like oj but I think it looks like dirty pee...lol His spirits still holding up. They gave him this rinse that you swish then swallow. It numbs your mouth and throat. It has benedril in it. Hes taking oxycodone takes 2 it puts him to sleep.So between the 2 he doesn't have a chance. He's trying so hard to watch the game put he keeps nodding off. Very funny...lol
Saturday, September 4, 2010
8th day pictures
I tried to download these friday but for some reason the comp. said no... The plan was for the girls get together for dinner while Lonnie was in the hospital. We all got a nice surpise and they let Lonnie come home. Carolynn came up, my neice, Crystal and Tommy, her boyfriend lives here in Atlanta. My sister, Diane is Crystal's mom and she came up. So we all got together at our apartment. Lonnie didn't want his picture taken but he was here. We all had a nice visit and got to know Tommy too.
10th day
Hi everyone. So far so good. He didn't need anymore platelets nor blood cells. So that's good. His numbers went up very little but at least we're seeing some changes. It's getting harder for Lonnie to swallow and his taste buds aren't the same, not completely gone but almost. He's amazing! His spirits are very good and doesn't complain. If things work out, in about a month, we should beable to visit home for a long weekend. later....
Friday, September 3, 2010
Friday 9th day
Well, Lonnie made home yesterday. It sure was good having him back. My sister and her daughter and boyfriend, came over last night. Carolynn came up yesterday. We had a good visit with everyone. Our girls sure are growing up to fast. I hated to see every one leave. Carolynn left this morning. I have some pictures, but Lonnie didn't want his taken at this time. He's feeling pretty good. We're at the clinic now. Their giving him some fluids and then we'll go back to the apartment. Tomorrow they'll give him more platelets. Hope everyone have a good Labor Day weekend...later
Thursday, September 2, 2010
Day 8
Good news today. Lonnie gets out of the hospital. His side effects are minimal and no bleeding of any kind any where. Now into the daily visits to the clinic. Up at 5, clinic at 7:30 and sit there all day...gotta keep all the germs out of the apartment. alot of work a head of me. I heard some people wants an address. here's the address to the hotel:
1901 Savoy St #724
Atlanta, Ga 30341
hope to hear from ya''ll soon
1901 Savoy St #724
Atlanta, Ga 30341
hope to hear from ya''ll soon
Wednesday, September 1, 2010
Day 7
Well, it's happening. He started losing his hair today. We got t
he nurse to cut his hair. It's all gone but nubs. Tomorrow I'm taking our clippers in and clean it up better. I'm not posting any pictures until Lonnie and Mom tells me I can. He's in good spirits. After we ate dinner Lonnie told me his tongue,mouth and throat was feeling funny. So I guess his mouth sores are coming in. Hope it's not to bad. The doctor said he should be able to get out later next week. We're hoping sooner. Keep those prayers coming...love you all Corky and Lonnie
he nurse to cut his hair. It's all gone but nubs. Tomorrow I'm taking our clippers in and clean it up better. I'm not posting any pictures until Lonnie and Mom tells me I can. He's in good spirits. After we ate dinner Lonnie told me his tongue,mouth and throat was feeling funny. So I guess his mouth sores are coming in. Hope it's not to bad. The doctor said he should be able to get out later next week. We're hoping sooner. Keep those prayers coming...love you all Corky and Lonnie
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