Day 6th

today is day 6...he woke up not feeling very well today. had an upset stomach. Just a part of the treatment. still has his hair, that should be next. he's really tired. i told him to just sleep,i'll be here when he gets up. he gets his last shot of chemo today at noon. i thought he was done with that. he got a shot of chemo on friday and one on saturday. then his last one today. i don't think he'll get any more. his platelets were low so they gave him a bag of platelets .

Day 6

Well, Lonnie always seems to amaze me. His numbers are below .1 and you'd think he'd show some kind of reaction from all the chemo and drugs. But not Lonnie. He's really making my job real easy. The hardest thing I've done so far is put his socks on his feet. Everyone said's it's coming. We'll see! Just got through with lunch. He still has his appetite. He's going crazy in this room. He started cleaning up the area. That doesn't sound like someone who should be sick. later....

day 4

Lonnie's doing pretty good, considering. He's not eating very much and started to get mouth sores. All and all he has a pretty good attitude. The hair loss is very little. I thought we were going to cut his hair today, but he's not ready. We've been watching movies durning the day. One movie you don't won't to waste your time nor ur money and that is Sin City. Had some big name people but wasn't worth it...later

friday

Lonnie and his mom, in good spirits

the red bag is the stem cells.

the nurses getting ready

Well gang, he's doing gooood.He's slowy losing his appetite. I found a bold spot on the back of his neck and he keeps itching. That's a sign of him losing his hair. Today we're going to go ahead and shave his head. He really don't mind staying at the hospital and the food is really good. When I'm there they give me a plate too.I'm putting some pictures on showing him getting his stem cells...

Aug.26. Not a great day but not a bad day

Well, we thought he would get out today. No such luck. Because he had a fever shortly after the transplant they decided to keep him til his numbers go up. That could be 2 weeks...So I'll go to the hospital early and leave at 5 or I'll go late and stay late...At least they'll feed me too. The food in the hospital is really good, so far. His spirits are good because we know the out come...My lap top was down today, so I couldn't write anything...I have to find some batteries for my camera to down load the pictures. Lonnie's Uncle came and visit us yesterday. Lonnie's mom and brother, Phil, came and stayed a couple of days. It was nice seeing them. I know Lonnie was glad that they were here. Ya'll take care and keep those prayers coming. And thank you all for the support and prayers

08/25/10

Just wanted everyone know that Lonnie's fever broke. He had a good shower and some good food. He's feeling much much better.We'll see what tomorrow brings

wednesday after transplant

well the transplant lasted about one hour and a half. that went well. we were waiting for some meds to come and Lonnie decided to have chills. that lasted 30 min. he then got a fever. so he won't be coming home tonight. they drew more blood to see whats going on. waiting for the doctor to come and tell us whats going on. to be continue tomorrow

WEDNESDAY "TRANSPLANT DAY"

Well, it's here. Lonnie feels good, just real tired. They have to work him in to put the central line back in. As soon as they do that, they'll get everyone together and start the transplant. He just said he's ready NOW...The RN just came in and said the radiologist will do their best to work him in. They have 2 that their going to do first. This is going to be a lonnng day.

Tuesday 8/24

Well, Lonnie is doing great. No fever, no chills...Yeahhhhh!!!! The doctor came in and told us that the trraansplant is still set for tomorrow. They started the prograph, he'll be getting this for a few days. Tomorrow when he goes home he'll have a little black bag that he'll have to carry. It has the prograph in it and it will be hooked up to his new central line. The prograph is for the GVHD, graph verses host disease. It's not good stuff. I'll have to get back to you on what that is....later

Monday 8/23/10

Before I get into today I just wanted to say that Lonnie had a great weekend. His Mom and brother, Ken, his friend Linda and her boyfriend, Dave they all came up and we had a great time. Lonnie, Betty, Ken,Linda and Dave all talked about the time that they all were going up. A lot of funny stuff. I really enjoyed having the family here and Linda and Dave is wonderful. Now, today...Lonnie is in the hospital til Wednesday. They have been giving him antibiotics so he should be find. He's in no pain and feeling very good. So far they see no reason to cancel the transplant... that's good.

Monday 8/23/10

Well, typical Monday, nothing going right. yesterday Lonnie ran a fever and had chill's. they did cultures (blood) and they came back positive. he has a bacteria and their going to put him in the hospital til his transplant.they'll be taking his central line out and doing the vein thing. he just got his numbers back. wait....well the numbers still looking good. some going down, but NE# is still good. that's the one that determines if he can still eat out. later

Sunday 22nd

today is lonnie's last day of chemo. he finished his last pill at 6am this morning and now his last iv of chemo. he's not having a very good day. he started having the chills. they were so bad his chair was shaking. it's a good thing that we were here at the clinic. he didn't have a fever at first. the doctor came around and talked to him. the doctor looked at his central line and said it looked good but there might b a little bactriea in the line under his skin. they ordered 2 antibiotics. he needed some red blood cells so he's getting that now. the first time they checked his temp it was 99.0. they just checked it and now it's 99.7. at least we're here at the clinic and not at the hotel. ya'll take care...

friday 20th

Well,this lap top is a pain, so I hope I get everything in before my thumb hit's the pad. Lonnie is doing very well. He gets a little confused sometime, but other than that the other side effects hasn't appeared yet.
when we get back to the apt. I have a picture or two to put on. he has a couple more days of the pills to take. The IV bag is little. It takes a little over 30 minutes to drip. We should be through here shortly. Will do more later.

wednesday 18th

Lonnie's not feeling very well today. He ran a fever last night. Ended up calling the doctor. He said his numbers were OK so just watch him and when we go in get them to get a culture on him. We're picking up the bulsufan today. That's the pill side of the chemo. Tomorrow we start the IV form of the chemo. Already starting to feel some of the effects. It's only going to get worse before it gets better....

Tuesday-17th

Today we were to have off. They decided he needed more blood, so we go today at 11:30. Things are starting to wear on Lonnie. He's been nauseated and now he has a rash and is feeling run down. The blood will help with that. Tomorrow we start his pills and the chemo. I think the rash is from the chemo meds that he took yesterday. The took 5 pills. A clear capsule with 7 little pills in each one. They took his blood every 1/2 hour for 5 hours and then every hour for 4 hours. Some how they do this to see what dose he'll need. Who knows...????We're to pick up his chemo pills tomorrow...the first ones at 6:00pm. Keep those prayers coming and if ur up this way, stop at the blood bank at Northside Hospital and give them your plateletts for Lonnie Lewis...

Sunday

we're sitting here the in tower. lonnie's numbers are starting to go down, just alittle bit. his potassium was a little to low so their giving him some now, then they'll give him his second dose of campath. then i think we'll be going back to the apartment.

on our way pictures

for some reason my pictures disappeared. I'll try again

08-13-10

Lonnie handle everything very well today. It really didn't take that long. Had a good night too. Carolynn and Allie came today and plans on leaving saturday afternoon. Tomorrow is a big day. 1st day of treatments..

on our way

We had lunch with Betty and the boys at Ryan's. Boy we packed the car full. This is just the trunk. We got up Wednesday morning and Lonnie was setting there looking outside the window.

Aug 11th

Well, looking good. Settled in...Not home but close enough... Here's some pictures. having problems, but i'll work on it...

The time is here

Well, it's time. We've been doing alot the last few days and there's a ton of stuff to do. With Lonnie's help we'll get it done. I am trying real hard not to take everything from the kitchen. I've picked up stuff and thought about it, then put it back. I'll make do with what I got and they have at the apartment. Lonnie got 2 bags of blood the other day. I think they gave him some hormones in the blood because he's so fickle...worst than me. Well, we're having lunch with his mom and brother tomorrow at Ryan's, then we're off to our new venture. One more thing before I go. Our son Philip finally got a job. If you go to Charleston there's a candy store by the market, he works there... go see him. Will talk to ya'll later. We're taking our computer so as soon as we get set up I'll be on with pictures and news on Lonnie....Keep those prayers going

Aug.7th

Well, we're both unemployed. Just one thing, he gets paid and I don't. Lonnie had a blood transfusion yesterday, they gave him 2 bags this time. He said he felt better as soon as he was through at the hospital. We'll be spending the next few days getting ready. We're taking today off and going out with Kelli tonight. We're taking Shambles over there then we'll be hitting Kelli's favorite Mexican restaurant and good Margarita's.

Education day

Wow!!! What a day. I don't think it will be as hard as we thought, but it still want be easy. His meds are to be taken on time everyday. From 5:30am til 12am. He wanted to know when will he get to sleep? I told him in his chair while getting chemo. He'll be in the chair for 4 to 6 hrs. He can get up and walk around or get on the stationary bike and ride. Once he starts chemo he can only leave the apartment to go to the hospital. With all the stuff that he's going through and the things that I'll be doing for him would make everybodies head swim, it did ours. All the dates are confirmed. The donor agreed to do them on schedule. Don't know who the donor is but we do know that they are in the states. I'm glad that Betty and Phil went with us. They learned alot too. Every time we go there, we like the place and the people, that much more. We already feel like we're part of their family. Brook is our coornadior, I'm not sure that's the word I'm looking for, but we love her to death. She knows what she's doing and is very smart. Lonnie and Brook have one thing in common. They both love bologna and cheese sandwiches with duke's mayo....She's so funny too. We'll be going down on the 11th to get settled in the apartment and do a little site seeing. Will write more later...Brook is the first picture with Lonnie and Cindy( the blonde) is the nurse practitioner.

???

What takes a man so long to admit that he's not feeling well? Well, Lonnie finally said he couldn't do any more. He was out side doing the ditch and just couldn't do it. He's tired and couldn't breath. I keep telling him not to push himself, but he doesn't listen to me. He don't even listen to his mother. He's so tough...he thinks. We'll be going to Atlanta tomorrow and he's hoping that they'll give a blood transfusion. I'm not sure they will, being so close to the transplant and all. But we'll see. Next Friday is our last day of work. The doctor might tell him to go ahead and quit now. I'll let everyone know when we get back.