Tuesday, December 7, 2010
Merry Christmas
Well we're home now and that is wonderful. We don't have the results yet on that Chimerizm. That'll determind if he's cancer free. He still has to be careful. They took the picc line out and he is so happy. Will let ya'll know about the results when I get them
Monday, December 6, 2010
Sunday, November 21, 2010
Day 88 and 12 days left Yipeeee!
It's been a while since I've written anything, sorry about that. Not much changed. Lonnie's number still up and down. But when they go up, their up good. We're down to one day a week now. He's getting a bone marrow biopsy on Tuesday. We'll probably have one last appointment on the 30th and then the final one while The Doctor on the 6th. We'll be home for Thanksgiving and we have a lot to be thankful for. Not just Lonnie's but I think we found a way to help me with my hives. I'll let ya'll know the next time I write. That is a blessing in itself. I've been fighting them for far to long. So say a prayer for both of us, that Lonnie's BMB goes well and that the pills that I'm taking works.... Thank you everyone for your thoughtfulness and prayers...we love you all
Thursday, November 4, 2010
Day 71 - 29 Days left
Well Lonnie had his stem cells boosted yesterday. Everything went well. He slept all day. Now we're back here for his regular appointment. It's raining and cold today, so thats ok. It gives us something to do. Hopefuly this little set back won't delay our out time. They'll check his stem cells again in 30 days, which is our out day. We'll see!!!
Tuesday, November 2, 2010
Day 69 - 31 days left
I know it's been a while, so I have alot to share. The blood work has been up and down. Lonnie hasn't needed any blood nor platelets. They did a blood test that's called chimerism ( not sure if that's how to spell it, but i think it's close ). This test tells if the donor's stem cells is working and if Lonnie's is non cancer. Well! The first one showed that the donor's were 61% and no cancer cells. Yeah! The second one was different. The donor's stem cells were 17%, which is not good at all. Lonnie was suppose to start tapering down on his prograf pills. They called us and told us not to. When we went in Monday they told us all this and said that Lonnie is going to need more stem cells. So tomorrow we'll be going in for more stem cells and maybe more blood. Hopefully his body will except these stem cells without any problems like the last time. Well enough of that for now. We've been going twice a week for his appointments. On the weekends, we've been to Stone Mountain and Challahoochee River, where we must of walked 5 miles. The last 2 straight up...We can go to places as long as there is no crowd, so we go at opening...Works out great. Hardly no one around. Then there's been times when we can go home, when they let us. That was nice. Here's some pictures of our outtings..
Monday, October 25, 2010
Day 61 - 39 left
had a blog saved and some how I deleted it. so, their going to taper down is prograf so that means his magnesium will start acting right. hopefuly next week we'll be down to one day a week visit and guess what that means? well his numbers were good. some up and some down. ya'll have a good week.
Saturday, October 23, 2010
Day 59 41 left
I can't believe our time is getting short. But it's still a long time away. We're off on weekends from the clinic. We try to find things to do without a crowd, so we have to start early. Going to the CNN building and then the Bicentennial Park. After that probably back to our room. I finally found a game that Lonnie likes. It's Dominoes! Of all the games we have and the ones that I brought down here, dominoes is the one he likes. He's not good at it yet, I know the time will come when he beats. We played 4 games last night and I won them all. Yeah me! Well he's nagging me to make breakfast so I gotta go. Will download pictures later. Love ya
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